Monday, November 16, 2009

Another frusterating night.

It's 3:30am and it's been six days now since my infusion and I don't want to jinks myself but I do seem to feel, and I'll put it this way, less miserable.  But whats six days really.  My doc, Doc Sleven, has told me that these biologic drugs really take a good 4 weeks to really start showing any response.  With that said, I'm sitting here in my room and my butt hurts and with a little bit of annoying left side pain.  It just sucks because I'd like to go to sleep but this pain just won't dissipate.  My normal tactics of siting on my heating pad help and laying on my left side help.  Interesting fact is that by laying on your left side as opposed to your right, your bowls actually relax more.  So tonight is another sucky night.  If it gets real bad I'll take a real hot shower to relax those butt/gut muscles.  I do take Tylenol too and that helps with the crampy achy pain.

4:00am The feeling now is like a heaviness on my anus and it won't go away.  I've been tossing from side to side on my bed and using the heating pad directly on my bum and still I just can't get it to go away.  It's so uncomfortable. If I lay on my left side I hear my guts rumble and sometimes I can release some gas.  It feels better to do so but it also strains my smooth muscles down there to the point that they feel clinched up and that just hurts.  Finally I go into the bathroom to use it and I'm able to relive my bowls after some coaxing and straining.  I'm in there for probably 15+min but it changes everything in my guts.  All that built up pressure is now released.   I'm now able to sleep, well at least for a few hours.  Until I'm woken up because I need to pass gas or something.  But the worst of it is over for tonight.

I'm going to get my last colonoscope pics scanned and posted up here.  Then you all can see how bad my inflammation is.  Untill then, I hope you all are getting a better night sleep than I.

2 comments:

Paul Aanderud said...

It helps me to understand the struggle to sleep by reading your posts. The awful disease has derailed your dreams, but maybe this new infusion can get the dream machine cranking again. We pray for you every night and we have shed many tears over your state. Get better Dave, we love you.
Paul, Melody, and the boys

Paul Aanderud said...

Ditto to Paul dear Dave.
We miss you and pray for you.
Keep updating for us.
Love,
Mel